Joey was messing around with some of the doctor's paraphernalia and I was so scared the doctor would walk in and see Joey with his headgear on! It was quite humorous! Only Joey could have me laughing as I sit waiting to find out if I have cancer! So the doctor finally came in after making us wait an hour and told me that the biopsy results were "inconclusive". Basically what that means is that I may have cancer...and I may not. They just can't tell by the sample. Bummer! I REALLY was hoping for an answer one way or the other. Here we are at the end of June almost and I still don't know what's wrong with me! Two months of waiting and I still don't know. Frustrating!
So the doctor gave me four choices.....1. Redo the biopsy but with no guarantee that it won't come back inconclusive again. No thanks. 2. Wait 6 months and watch it closely and then redo the biopsy in 6 months. Risky if it is, in fact, cancer. 3. Take out half of the thyroid ( the side with the biggest tumor) and test it for cancer. If it shows cancer, I have to have the other half removed as well... but if it doesn't show cancer then they can leave the left side of my thyroid in and I might not have to take synthetic thyroid hormones the rest of my life. 4. Take the whole thyroid gland out and be done with it. This option will require me to take Synthroid the rest of my life.
After much thought, and prayer and fasting I have opted for option 3. I feel good about it and Joey feels good about it. The doctor seemed to think we were making the right choice as well. My doctor said he's a little biased though because his sister had thyroid cancer and she just sat on it and didn't get it taken care of for a long time and it got more complicated. So he's not a big fan of the "wait and see" approach.
There is a small risk that the small tumors on the left side will continue to grow and one day in the future I will have to have the left side out as well. It's also possible that they will never get bigger than they are right now and I will have a 1/2 of a thyroid that works just fine. That's what I'm hoping for.
So, I find out Monday the date of my surgery. Hopefully sooner rather than later. Now that I've made the decision I just want to get it over with. Before I can have surgery I have to go get a physical from my doctor, go do more bloodwork, go get a chest X-ray, and go have some procedure done where they stick a tube down my throat and take pictures of my vocal cords. There is a small risk that the nerves to my vocal cords could be damaged so they take pictures ahead of time. It's overwhelming to think about how much time and money I still have to spend at doctors offices. Not fun. I definately like being the nurse better than I like being the patient!!
So that's the latest news....when I find out my surgery date I will post it here. Thanks to everyone for the kind emails, texts, phone calls...ect. It is all much appreciated!
8 comments:
You may also have your slides to be evaluated by expert cytologist.
make sure that doctor who will do the surgery to be careful around right superior voice nerve[due to the location of the nodule]
Alisa,
I'm so sorry that you have to go through this. I hope you can have the surgery fast and get it over with. Call me for ANYTHING! Love, Christy
I'll be praying for you!
On a side note, I didn't know you had a blog too...so fun to keep up on you and your family.
The DeSpains are with you all the way! Anything you need, we are there. Love, Raechel
We love you and know that eveything is going to be fine!
i just wanted to let you know that i admire you and your family! your guys' spirits amaze me! i love that you can still laugh, even with all of this going on. anyways i have been thinking about you alot! right after i had Lincoln i was having tons of medical issues and one doctor told me more than likely i had multiple sclerosis. later a neurologist said it was a number of "disfunctions", "damages", "some birth defect", but not ms. anyways it was a hard few months, and i feel like i kinda know what your going through, kinda! i really hope that everything turns out to be okay with you too! lastly i want on the list to view your photo a day journal... brittany_monroe@yahoo.com
We're thinking about you!! Plus, I love the photo of you and Joey...he must follow the motto..."laughter is the best medicine":)
Alisa you are in our thoughts and prayers....I wish I were closer to help. Your family (and of course you too) is simply beautiful! I can't believe you have a teenager! When you are better we all should take a good old fashioned Mexico trip....call it "the next generation". Take care....Natalie
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